Little did I know that when I posted the hymn challenge last Sunday and said this:
. . . that just one day later we would be in the midst of a family difficulty. One of our girls has been diagnosed with a Chiari Malformation (CM). Chiari Malformations (CMs) are structural defects in the cerebellum, the part of the brain that controls balance. When the indented bony space at the lower rear of the skull is smaller than normal, the cerebellum and brainstem can be pushed downward and into the spine.
So, what does this mean for our family? First, we have to see a neurologist locally; praise God that is happening today! We also must see a neurosurgeon so that our daughter can have surgery to remove part of her skull to halt the progression of damage to her central nervous system. Recovery will be a long road from what we understand, and we are praying this all happens quickly so that she can continue on with her college plans in the Fall.
So, how have I decided to best document this? I told my husband that I need a notebook. It's going to be a long road. I want all of our questions, notes, and information in one place. We have also already been receiving beautiful prayers in e-mails, on her CaringBridge site, and via phone call. How will I keep it all together?
Well, God showed me this morning that I can use a Simple Stories album. Perfect!! I have already added paper to the notebook with questions for today's appointment. But I can also print prayers and comments on cards and add to the page protectors as encouragement. I can add photos of the journey. I can even use the page protectors to keep business cards from each physician. It will serve as the perfect spot for everything, and who knows how God may use it in the future. Here is a page I started this morning with two of the e-mails I received. Nothing fancy, just get them printed and in the page protectors. Washi tape adds a quick and super easy bit of color.
I have more to print just not time yet. What an encouragement this will be to the family to look through these!
So, don't be scared to Document the Difficult! It could be a source of encouragement too. Blessings to each of you!